A little longer

Things always seem to get a little worse before they get better.

Yesterday, Sam was escorted to the bottom level of the hospital for a swallow study.

I had an overwhelmingly eerie feeling as I walked down the hallway.

First we passed the OR where Max had two surgeries almost two years ago.

And then we walked back to radiology, 

where Max had multiple swallow studies and feeding tube placements.

I felt like I was re-living a terrible nightmare.

A few days ago, we noticed a strange noise (stridor) when Samuel ate.

And his oxygen was still all over the place.

There seemed to be a correlation between his feedings and oxygen desats.

So the doctor ordered a swallow study.

Thankfully, the results were much more hopeful than we anticipated.

Now he is on thickened feeds for a while.

This will hopefully help with his stridor and his oxygen requirement.

The doctors and nurses keep reminding us that he was a very sick little boy

And it is going to take him time to recover and prove he is ready to leave. 

We will be here a while longer. It's hard to be patient sometimes.